Unsalted

On June 11, I was taken to the hospital because I could no longer transfer from my wheelchair to the bed, other chairs, or the toilet without falling.  I thought I’d fallen four times in 4 days, but my son said it was more like seven times in 3 days.  I had just started a new medication for neuropathy and twitching muscles (part of my disability).  I’d also just gotten one of those “I’ve fallen and I can’t get  up” buttons, so each time I fell and pressed it they called emergency services and my son.  I also called my son a few times without calling emergency services. He lives a few blocks from me. 

I was nauseated, and light headed and was pretty sure the medication was at fault.  The last time emergency services came to get me off the floor, they strongly suggested I go to the hospital.  I argued, being hard-headed and sure everything would be okay if I stopped taking the meds.  When I argued about going to the hospital, my son stepped in and said very firmly that I was going to the hospital.  He’s as hard headed as me, and now he’s bigger than me.  The next thing I knew I was being loaded into an ambulance.  

Things went a bit blurry after that.  The next thing I remember was being in an emergency room.  Then more blurriness and I was in the Intensive Care Unit.  My sodium levels had dropped to 110, and if it had dropped any lower I could have gone into a coma or died. So, thank goodness for hard headed sons.

When your salt gets that low, they can’t just flood your body with salt or it could cause you to go into shock.  So they slowly brought my salt up in the ICU, then sent me to the “step down” unit, which is a step lower than ICU, but still required a blood test every 4 hours.  

When your sodium gets so low it affects your neurological system, muscular system, and brain activity.  I could not transfer or even stand up without assistance.  I had to be strapped to a physical therapist to move from the bed to a chair.

Bored one afternoon, I cleaned out my purse, and found my Gwenn Seemel mask, which matched my mood for the day

After my salt was close enough to normal, I was transferred to a rehab facility for two weeks where the real physical therapy began.  As my salt stabilized, and therapists worked with me for 3 hours a day, I could make safe transfers, use my manual wheelchair, stand up with a grab bar, and most importantly, transfer myself to the toilet. 

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My first watercolor attempt at hospital
My physical therapy car
Got in and got out — but didn’t get to drive away and escape

I got home last Monday, July 6, have had a PT assessment, and will have a therapist coming to work with me twice a week for 2 months.

I’ve always been the envy of my over 60 for my ability to still eat as much salt as I like.  The reason is I have a tendency for hyponatremia (low salt) because I have SIADH (sigh-add). SIADH (Syndrome of Inappropriate Antidiuretic Hormone Secretion) is a condition where the body releases too much antidiuretic hormone (ADH). This causes the kidneys to retain excess water, which dilutes blood sodium levels.

It’s very rare for a medication to cause such an extreme loss of salt, and my doctor said he’d never heard of it happening before and is researching the drug and recorded reactions to it.  Maybe his research will result in a big fat warning label for people with low salt.  

Meanwhile, I’ve been very glad to be home, glad to be alive, and glad to start blogging again.  When I became conscious of what happened to me, I was figured I was still on the planet to finish up paintings I’ve been planning and postponing for years.  And write more, too.

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Second watercolor sketch while in rehab

I had such good support from my friends who visited and brought flowers, food, and encouragement.  

I was so out of it, I was unable to comprehend what doctors and nurses were saying to me.  A dear friend stayed with me and took notes to send my family and close friends so they would know what was going on.  She sent them to me too because my brain was just not retaining information.   

I was worried about how much I was forgetting and miscomprehending and unable to communicate, so I told my nurse if it continued another month, I thought I should get a test for early onset dementia.  But she said to wait.  A month seems like a long time to me.  But in healing time it’s quite short.  Give myself at least three months.  And it’s true, every day I’m feeling just a bit better, a bit more energetic, and a bit smarter.   

So, again, I’m going to try to start blogging more often, and painting more and living as fully as possible.   I’ll be salty, too.

Thanks to the doctors, the excellent nurses, and everyone who helped me through this strange medical event.  

I’m so happy to be home.

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Thanks to my friend for watering my plants

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Thanks for reading my blog. Feel free to share it, if you’d like.

This blog is brought to you by the generosity of people who support me on Patreon , buy my art, and who support me in so many different ways. 

If you’d like to make a one time donation, you can do so at paypal

Cards and prints of some of my art is available on Redbubble.  Also T-shirts and stickers and other odds and ends. When you click an image, in the lower right hand corner you’ll find a link to all the various products that these are printed on. If you have any trouble finding what you’re looking for, let me know. joyzmailbox@gmail.com 

You can subscribe to this blog by email in the link below this post.

If you find a typo, let me know, and I’ll send you a postcard.

The Limits of Gratitude

I originally wrote and posted this in 2015. A lot has changed in the world and in my own circumstances since then, but I still find comfort in feeling gratitude for life while also feeling discomfort about many aspects of life. This has been a particularly challenging year in many different ways, but I continue to find friends, helpers, and family so precious. I have learned ways of expanding my ideas of what physical and mental health mean. I’ve also learned to talk to people who I disagree with, without losing all my composure and letting myself be pulled along by hatred and misinformation. Life will always challenge me in one way or another, and I’ll have strong emotions, but no one can take away my core identity, values, and basic human decency unless I let them. And I won’t. I know too many kind, valuable, decent, and funny people. If that’s not enough, I can find comfort in nature and in the fact that there are people, against all odds, committed to keeping parks and natural spaces and gardens in our cities, in our country. Who are working to keep clean air and water for us all. Like a thirsty plant, if given a little attention, kindness grows and grows, even in the worst of times.

Happy Thanksgiving!

I remember the Thanksgiving I began the tradition of asking everyone at the table to tell something they were grateful for.  Before then, we might have said grace or not, depending on who was there.  My extended family’s spiritual practices ranged from out and out atheists to Southern Baptists.

I didn’t have a particular religion, but I was spiritual, whatever that means.  I was in my mid-30s.  My two children were 9 and 10, I believe.  I don’t remember who in the extended family was there, except my younger brother.

He was around 30 and had been dealing with schizophrenia for about a decade, mostly through denial.  We were all in denial.  I’d hoped that the prompt would help him find something inside himself to be grateful for.  He was an incredibly creative and energetic person at times.  I wanted him to see that in himself.  Or to be grateful that he had a place to live, or for the food we were eating.  Something.  Anything.

When we got to him, he scowled and muttered that he had nothing to be thankful for.

“Nothing?” I asked.

“Nothing!” he said.  It broke my heart.

My gregarious and kind husband relieved the tension by talking about being thankful for family and food and some other things.  I’d had lots of experience covering up a broken heart, so it was easy to get on with the festivities.  My brother left after he ate.

I think he only spent one more holiday with the family, but each Thanksgiving, I remember that scowl and statement.  I’ve actually become grateful for it.  It reminds me that gratitude has its limits.  It’s taken me years, but it taught me that I can’t brush away, cure, or repair the darkest parts of life.

Minds, hearts, and bodies are so fragile.  Those who appear strong have invisible cracks and fissures on their souls that no amount of gratitude or denial can repair.  But we keep breathing and moving forward.

Unbearable things happen and we must carry them.  Some of us do it with grace, some of us with anger and despair.  I’ve carried my burdens both ways.  Sometimes I think anger and despair is the more authentic reaction, but the more I intentionally practice gratitude, the more I realize there are an infinite number of invisible forces helping me bear my burdens.

Since that Thanksgiving, my brother died a sad and lonely death, my own health has deteriorated from a disease called Hereditary Spastic Paraplegia  that has compromised my strength, energy, ability to walk, and my ability to have a job.   Other loved ones have died, have suffered injuries and losses.  Wars have continued to mar and scar the world.  We rush blindly toward our own destruction.

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And yet, and yet…I’m more and more grateful for the challenges and heartbreaks I’ve experienced.  I’m so much more aware of how one thing carries the other, how we are always in darkness and light, always fully alive but stumbling toward the mystery of death.

The book Waking: A Memoir of Trauma and Transcendence by Matthew Sanford, is the story of the author’s journey to healing after being in a horrific car accident when he was 13.  His family’s car skidded off an overpass, killing his father and sister and leaving him paralyzed from the chest down.  A quote from him that I hold close to me is:

“When I ‘left’ my body during my traumatic experiences, it was my body that kept tracking toward living.  It was my body that kept moving blood both to and from my heart.  Often, as we age and can no longer do what we once could, we say that our bodies are failing us.  That is misguided.  In fact, our bodies continue to carry out the processes of life with unwavering devotion.  They will always move toward living for as long as they possibly can.”

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My life seems dark at times and I think I can’t bear another challenge.  I’ve learned enough, thank you very much.  Nevertheless, more challenges are coming for me.  As long as I walk this earth, along with every other human, I’ll struggle with loss and sorrow.

So my work is to not let it blind me to the beauty of nature, the cycle of seasons, the comfort of good friends and the blessing of a roof over my head.  I have to make an effort to balance the light and the dark.

A week ago, I was talking to a child in the neighborhood about being caught out in a rainstorm.  She said, “I saw you!  You were talking to a plant.”

I laughed.  I was actually taking a picture of a maple sapling growing from the center of a rhododendron bush, but I was in fact, talking to a plant.  Or communing with it.  Capturing it, too, treasuring it.  It was a thing of beauty on a cold stormy day.  I’m glad I didn’t keep my head down in the rain and miss these growing things.

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I know one day, my life will be over, and I’ll flit away into the mystery.  While I’m here, I’ll continue to pay attention when I can, and cry when I need to.

I’m mortal.  That’s the thing I’m most grateful for.

I’ll end this with a link to a lovely review by Maria Popova on The Marginalian of a posthumous collection of Oliver Sack’s essays that he wrote while he was dying, aptly titled Gratitude.

Thanks, my friends, for reading my post.

Spring Redemption

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Thanks for reading my blog. Feel free to share it, if you’d like.

This blog is brought to you by the generosity of people who support me on Patreon , buy my art, and who support me in so many different ways. 

If you’d like to make a one time donation, you can do so at paypal

Cards and prints of some of my art is available on Redbubble.  Also T-shirts and stickers and other odds and ends. When you click an image, in the lower right hand corner you’ll find a link to all the various products that these are printed on. If you have any trouble finding what you’re looking for, let me know. joyzmailbox@gmail.com 

You can subscribe to this blog by email in the link below this post.

If you find a typo, let me know, and I’ll send you a postcard.

A Bird Will Tell You

A Bird Will Tell You by Joy Murray

I’ve been on a medication for Bi-Polar disorder for a month. It was one of several I’ve tried over the past few months, but this one seems to be keeping me steady, has few side effects, and gotten me to feel like myself again. It’s a quite wonderful feeling.

I started this journey years ago, really, but this most recent bout of depression started in October. Then it was hard to be creative or to see any point to painting, writing or anything. I’ve done some work, but getting into a routine, finishing things – it’s been next to impossible. For this painting, I just started splashing paint on a canvas, cleaning brushes by smearing leftover paint on it, and letting it collect color.

But since I started this medication, I found some direction and a composition emerged. It became a sort of journal of my recovery. And then, one day, it was a finished painting. I hope it captures the way the treatment of a mental disorder, and the journey to brain health, is a process.

What do you think?

A Bird Will Tell You, by Joy Murray, 16×20″, acrylic and ink,

I hope to continue to be inspired to paint. I have already come up with ideas for two more. Getting back to a creative state of mind is a pure delight. I really appreciate my doctors and therapists who have helped me during this bout of dysfunction, who helped guide me back to good brain health. I also did a lot of reading on mindfulness and ways of maintaining brain health in a world that seems fragmented and in a constant state of mania.

If you’re having struggles yourself, I hope you find the kind of help you need. And remember it’s a journey. Just because one treatment doesn’t work for you, don’t give up. There are lots of options for our complicated brains. Keep searching for a doctor you trust, keep trying different treatments, until you find your way back to yourself.

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Thanks for reading my blog. Feel free to share it, if you’d like.

This blog is brought to you by the generosity of people who support me on Patreon , buy my art, and who support me in so many different ways.

If you’d like to make a one time donation, you can do so at paypal

Cards and prints of some of my art is available on Redbubble.  Also T-shirts and stickers and other odds and ends. When you click an image, in the lower right hand corner you’ll find a link to all the various products that these are printed on. If you have any trouble finding what you’re looking for, let me know. joyzmailbox@gmail.com

You can subscribe to this blog by email in the link below this post.

If you find a typo, let me know, and I’ll send you a postcard.